Health issue

[3blade]

Ok, here's more ideas:

What you described is called systemic phlebitis: widespread vein swelling. The burning is caused by the tissue stretching and tearing, possibly being "attacked" by inflammatory mediators.

Widespread inflammation, especially post virus, is often correlated with an autoimmune response - therefore, immunologist required.

The fact that vascular tissue is involved could also indicate a blood problem. If it was caused by oil or some other ingested substance, here's how it works: substances absorbed by the intestines, travel through the blood vessels to the liver. Here, they are processed and passed into the rest of the body via the heart and lungs. If damage occurred to the liver or spleen from something, it is possible those systems aren't filtering/processing waste, which is building up and causing damage. Gastroenterologist or hepatologist and hematologist required.

There is also the possibility of a connective tissue disorder that is disrupting the valves in the veins. This could cause back pressure and swelling.

Immune studies, liver enzymes, re-do blood studies. Perhaps testing for parasites. Thyroid/parathyroid tests. connective tissue disorders are either genetic, autoimmune or post infection damage. The reason for all the specialists that I'm recommending, is the easy stuff would have been picked up already. Gonna have to push for those referrals, afaik most are based out of the u of a in Edmonton.

Diabetes or bacterial infection are easy to detect so that's probably been ruled out.

As for more herbal/dietary stuff...don't. I recently saw a case where a guy was taking all natural supplements to lose weight. Ended up destroying his pancreas, did not survive.

And no submoa, this is nothing to do with sepsis or nitric oxide.

[tri777]

Originally Posted by 3blade

As for more herbal/dietary stuff...don't..

^^That!
The Last time i messed with herbal crap was 1995,
took Ginko, literally felt blood vessels pop deep in my
brain 20mins after taking it, that was the end of my herbal journey.

[densa44]

It is not the easy stuff. Stop taking everything for awhile except prescribed medications. Get a referral to a UofA specialist in haematology or immunology.

I don't think amateurs like me speculating on what it might be will help your wife's peace of mind.

Doctors come like the rest of us some good some not so good. Stick with one you like long enough to get an appropriate referral.

Best of luck

[rosh]

Originally Posted by 3blade

So unless she already had an appointment, there's no way she got in to see an immunologist that quick. Jumping around between gp's or ER doc's isn't going to get you anywhere, nor is there going to be a quick fix.

If you want further suggestions, give us more info. What tests, what specialists, what they said, all symptoms.

Totally get everything your saying. So family dr is getting her a specialist appointment with internist( not sure if that's the same as immunologist). She is scared, uncomfortable and having a hard time doing anything. She strongly believes it's happening to the kids( which scares her more then anything). And I believe all the stress this is creating is not helping her at all, I'm just trying to be the positive one for her. Hardest part I think is dr don't listen to her and don't think there is anything major going on. She has had numerous blood work, ultrasound, vein mapping, MRI and having a catscan done today. So far every test has been normal or no dr has picked up on anything. So she keeps going back to oil cause she was perfectly fine, then all of a sudden this. Her believeing it's starting on kids make her believe it's the oil. Hands and feet get red and bulging veins, very visible blue veins. I take everything you guys say and work with it so don't think your wasting your time with us. I strongly appreciate everything guys, very hard seeing my wife like this!! Thanx again

[raab]

Originally Posted by rosh

Totally get everything your saying. So family dr is getting her a specialist appointment with internist( not sure if that's the same as immunologist). She is scared, uncomfortable and having a hard time doing anything. She strongly believes it's happening to the kids( which scares her more then anything). And I believe all the stress this is creating is not helping her at all, I'm just trying to be the positive one for her. Hardest part I think is dr don't listen to her and don't think there is anything major going on. She has had numerous blood work, ultrasound, vein mapping, MRI and having a catscan done today. So far every test has been normal or no dr has picked up on anything. So she keeps going back to oil cause she was perfectly fine, then all of a sudden this. Her believeing it's starting on kids make her believe it's the oil. Hands and feet get red and bulging veins, very visible blue veins. I take everything you guys say and work with it so don't think your wasting your time with us. I strongly appreciate everything guys, very hard seeing my wife like this!! Thanx again

Fair enough good luck, with the situation. Guessing she's going for an abdominal or head CT? Hopefully they find something and this situation is solved for you or there's nothing and she gets feeling better. Always stressful when a loved one is sick. Last question to see if we can maybe give you a bit of help, is she having any other symptoms besides the bulging burning veins? Even minor things that you don't think are related might be give us a clue into what's causing it.

[Submoa_hunter]

What is the brand of the oregano? Have you tried calling the company.

[rosh]

Originally Posted by raab

Fair enough good luck, with the situation. Guessing she's going for an abdominal or head CT? Hopefully they find something and this situation is solved for you or there's nothing and she gets feeling better. Always stressful when a loved one is sick. Last question to see if we can maybe give you a bit of help, is she having any other symptoms besides the bulging burning veins? Even minor things that you don't think are related might be give us a clue into what's causing it.

Honestly nothing before, everything I have mentioned now and fatigue, burning complete uncomfortable. And says feels like blood is pooling, described almost like to much blood. Thanx

[rosh]

Originally Posted by Submoa_hunter

What is the brand of the oregano? Have you tried calling the company.

Holista, organic oregano oil. Contacted company said they would test lot#. That's no good as her mother has same lot# and hers tasted normal. Ours had a off tasted compared to first bottle we had. I have had a little from each bottle.

[raab]

Originally Posted by rosh

Honestly nothing before, everything I have mentioned now and fatigue, burning complete uncomfortable. And says feels like blood is pooling, described almost like to much blood. Thanx

Ok what type of CT are they doing today?

[rosh]

Head

[raab]

Originally Posted by rosh

Head

That's what I figured. To me it sounds neurological sense they're not finding anything on the tests. Any family history of neurological disease? Also I believe it's just a coincidence the symptoms started around the same time she took the oil. Good luck and let us know what they find.

[3blade]

Originally Posted by rosh

Holista, organic oregano oil. Contacted company said they would test lot#. That's no good as her mother has same lot# and hers tasted normal. Ours had a off tasted compared to first bottle we had. I have had a little from each bottle.

Please don't take this the wrong way, but there a very small chance it's related to the oil. Our bodies are very good at elminating toxins. And if it was the oil or something in it...at this point whatever damage it did is done, would not be definitively diagnosed and treatment would be symptom control, not cure.

What symptoms are the kids showing?

An Internist and immunologist are not the same thing but there is some overlap, and hopefully he/she sees something to point towards a specific diagnosis.

[rosh]

Originally Posted by 3blade

Please don't take this the wrong way, but there a very small chance it's related to the oil. Our bodies are very good at elminating toxins. And if it was the oil or something in it...at this point whatever damage it did is done, would not be definitively diagnosed and treatment would be symptom control, not cure.

What symptoms are the kids showing?

An Internist and immunologist are not the same thing but there is some overlap, and hopefully he/she sees something to point towards a specific diagnosis.

Not taking anything the wrong way. She believes the kids veins are starting to bulge and stick out more, and hands and feet get read when doing something. Thanx for all suggestions. You think internist will send to immunologist?

[rosh]

Originally Posted by raab

That's what I figured. To me it sounds neurological sense they're not finding anything on the tests. Any family history of neurological disease? Also I believe it's just a coincidence the symptoms started around the same time she took the oil. Good luck and let us know what they find.

Sorry, missed this one some how. Only disease on wife's side is ms. Her mother has had it for almost 30yrs, wheelchair for about 24 yrs( she is great, never complains). Anyways this is pretty much first thing family dr went at, had MRI right away. Nothing so thought better do catscan.

[raab]

Originally Posted by rosh

Sorry, missed this one some how. Only disease on wife's side is ms. Her mother has had it for almost 30yrs, wheelchair for about 24 yrs( she is great, never complains). Anyways this is pretty much first thing family dr went at, had MRI right away. Nothing so thought better do catscan.

Ok, well good luck. Ill send some prayers your way. Definitely let us know what you find out and if you need anything.

[JD848]

I am no expert but I have been dealing with some bad health issues,mri with contrast is the best for neurology stuff,but the ct scan may show something also.If your wife believes that something she took made her sick,don't exclude a medical toxicologist along with someone in auto immune disorders and a neurologist and an internal medicine specialist,plus if you have to get a little loud to make someone listen don't be afraid to push some doors open till you open the correct one.

You can also pay for a consultant fee from the mayo clinic along with list and all issues occurring at this time, with her health .in today's medical system you have to hunt down the right expert to pin point your illness,but a big majority of viral conditions will slowly heel themselves.

Check your home for any clues that may be harmful to your wife,starting with bedding, pillows and rugs and what you wash your clothing with,get rid of all your old pillows and anything else if you think it's viral,either way it's just plain healther and when your auto immune system is under attack allergies can make things worst or you can develop new allergies.watch if at certain times of day her condition gets worst and document it all everyday,this way when you get to the right doctor you won't forget anything and will help put them on the right track to getting your wife feeling better.

Your blood work is the road map to a big majority of illnesses , I can't think of the place off hand but you pay out of pocket for a complete break down of your blood and cells,most docs just order the stuff they think is wrong,but if they are wrong and order the wrong test ,it's all for nothing.

This info may or may not help at all,but ever bit helps and I wish your wife and your whole family that she gets better soon ,and I will pray that she get's better soon.Even if you have to refinance all what you own,when it comes to things that hard to figure out,spend the money,i did and that's why I am writing this tonight.All what you really need in life is your health and your loved ones,the rest doesn't mean a thing. TAKE CARE

[rosh]

Well thanx. That's is the tough part finding the dr that will find something or even check things out. Thanx again

[rosh]

JD, we hope all the best for you too. I think finding the 1 dr to start the real ball rolling is the key.

[rosh]

Originally Posted by raab

That's what I figured. To me it sounds neurological sense they're not finding anything on the tests. Any family history of neurological disease? Also I believe it's just a coincidence the symptoms started around the same time she took the oil. Good luck and let us know what they find.

Results are of no concern. Family dr keeps brushing her off, I'm trying to not loose my cool with dr. Anyways sorry to move back up.

[tri777]

Originally Posted by rosh

Results are of no concern. Family dr keeps brushing her off, I'm trying to not loose my cool with dr. Anyways sorry to move back up.

I would kick this current doctor to the curb and
seek out #2 & #3..something sloppy going on here rosh..
bloodwork/tests should have you on a path to take already..
to much time is going by now.. change course!

[raab]

Originally Posted by rosh

Results are of no concern. Family dr keeps brushing her off, I'm trying to not loose my cool with dr. Anyways sorry to move back up.

See if the family physician will refer you to a neurologist based on the family history. MS is difficult to diagnose and with the close family history and her symptoms perhaps a neurologist will find something that the family physician has missed. Has she had any new symptoms or any changes?

[rosh]

Thanx. Same symptoms, seams to always get little worse. I don't think the stress is helping and she is so worried the kids are starting. She is so confident that it's the oil. If I could get oil tested for poisons or something that might change something. Not sure how you would go about that. A dr at urgent health has put a call into neurological department at Peter lougheed. She is off to she my fathers dr Monday so hopefully he has ideas and gets a ball rolling. We are trying to get it moving but seams like nobody cares! Sorry for venting and thanx again.

[raab]

Originally Posted by rosh

Thanx. Same symptoms, seams to always get little worse. I don't think the stress is helping and she is so worried the kids are starting. She is so confident that it's the oil. If I could get oil tested for poisons or something that might change something. Not sure how you would go about that. A dr at urgent health has put a call into neurological department at Peter lougheed. She is off to she my fathers dr Monday so hopefully he has ideas and gets a ball rolling. We are trying to get it moving but seams like nobody cares! Sorry for venting and thanx again.

No problem, good luck and hopefully the neurologist can find something. Try calling poison control, they may have a place that could test the oil. In saying that I want to reiterate there's a very minute chance that its the Oil causing the symptoms. So hopefully you don't have to worry about the kids and can focus on getting mom all fixed up.

[JD848]

I believe the first rule when your struck with bad health,is to take care of your mind,it's so hard to do ,but stress just makes and can also mask over certain illnesses,so I ask for your wife to say the heck with everything and just concern her self with the health issue, a lot easier said than done,but with one less weight to carry the lighter the load to reach recovery.

Sometimes you have no choice and by blocking as much stress as possible will not do one bit of harm and it's good for everyone around also.A healthy mind is powerful medicine when your dealing with other health problems.

GOD BLESS AND TAKE CARE.

[rosh]

Originally Posted by JD 848

I believe the first rule when your struck with bad health,is to take care of your mind,it's so hard to do ,but stress just makes and can also mask over certain illnesses,so I ask for your wife to say the heck with everything and just concern her self with the health issue, a lot easier said than done,but with one less weight to carry the lighter the load to reach recovery.

Sometimes you have no choice and by blocking as much stress as possible will not do one bit of harm and it's good for everyone around also.A healthy mind is powerful medicine when your dealing with other health problems.

GOD BLESS AND TAKE CARE.

Agree 100%. That is my job making her realize this. Makes it a little tougher when she is worried about kids. Thanx again all, and all the best to you and your families!!