Some of you might have seen this on the news/live in the Beaumont area and know about it already, but I thought sharing it might help since so many people frequent the forum.
(Copied from the facebook page)
Quote:
FUNDRAISING SUPPER/SILENT AUCTION TO BENEFIT LOGAN AND SCARLET ASPHOLM
We need your help.
Logan and Scarlet Aspholm, ages 3 and 2, have been diagnosed with a rare genetic disorder, called Metachromatic Leukodystrophy (MLD). MLD causes loss of communication between the brain and the nerves, causing loss of abilities and eventually death. Life expectancy is approximately 9 years. Currently there is no known cure for MLD. The family has been made aware of clinical studies in other countries that have the possibility of prolonging their life, and stopping the disease progression. However all costs for this must come out of pocket, and the costs are enormous. Additionally, the family will need to retrofit their home for wheelchair accessibility and provide ongoing care for life.
**We are organizing a fundraiser at the Leduc Recreation Centre for June 16 2012, and are looking for Silent Auction Donations. Monetary Donations directly to the cause are also greatly appreciated.**
All proceeds will be going directly to the Aspholm family to help the kids.
Tickets: Adult (13 and Up) $20.00, Ages 7-12 $10, Ages 6 and under FREE
Time: 4pm -Family/Kids Activities, 6pm – Supper, 7pm - Auction
DANCE WITH LIVE MUSIC TO FOLLOW *there will be alcohol at this event*
For more info, if you have any items you would like to donate, or would like to donate funds to help the family, or for tickets, please contact one of the following:
Brenda Chitrinia – 780 929-8733
Jaclyn Aspholm – 780-217-2506
Chrissy Simpson – 780-238-8551
Jordon Oliver - 780-236-1335
For more information or to donate through PayPal, please visit www.wix.com/letusbekids/loganandscarlet
Or visit any CIBC and donate under “TRUST FOR LOGAN AND SCARLET”
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I work with a good friend of the family so you can certainly message me on here too..
If you don't watch the news here are the videos:
http://www.youtube.com/watch?v=4IxyA-HOOec
http://www.youtube.com/watch?v=mTmeTJjYhaM
Facebook page:
https://www.facebook.com/events/345715148819131/?ref=ts
Any help is good help, even ideas to raise money if you have any. If you have anything for the auction, PM me or contact one of the above numbers/facebook.